About Us

Cannon Kene Sickle Cell Foundation was formed by Charity Amarachukwu (nee Aneke) after the death of her beloved cousin Cannon Kenechukwu Nwanyawu who died in June 2006 after a long battle with sickle cell disorder. The foundation is in loving memory of Cannon Kenechukwu Nwanyawu(1972-2006).

Cannon's first inaugural meeting was in September 2007 with just four people in attendance; Charity Amarachukwu,Barr Brightson Okenwa, Late Reginald Mgbodile and Rita Okoye.The formal inauguration was in March 2008 and CAC (Limited by Guarantee) registration was in July 2012. Since inception, the foundation has been working alongside other NGO's, health professionals, parents and individuals living with sickle cell disorder to raise awareness and build support for all people affected by sickle cell disorder.

Mission

To improve the quality of life of individuals and families affected by sickle cell disorder through quality care,support, advocacy, education and research.

Vision

To be the best destination for care and support for all people affected by sickle cell disorder in Enugu state, Nigeria and beyond.

About The Founder

picture of ckscf founder

Charity Ndidiamaka Amarachukwu (Physiotherapist/Genetic counsellor) is the founder and chief executive of Cannon Kene Sickle Cell Foundation. In 2007, she founded Cannon Kene Sickle Cell Foundation as a means to provide quality life for people living with Sickle cell disorder and their families through advocacy,education, support and research. In 2008, after official inauguration of the foundation, she enrolled and trained as a certified genetic counsellor on sickle cell haemoglobinopathy. Over the past 15 years she has served on several state and national advisory committees and has represented sickle community in various professional roles assignments. Charity N. Amarachukwu brings a unique professional and social experience into her role as a community mobilizer and advocate who has navigated the sickle cell boat both outside of the health system as an advocate and within the system as a physiotherapist and counsellor in the clinical care team.Its through this dual lens that she continues to impact many individuals, families and professionals of all who has a critical role in improving the outcomes of interventions within this precious population. She has received several awards and accolades as a passionate crusader of sickle cell disorder.

Team Officers

  1. Charity Amarachukwu - President.

  2. Chidinma Anuebunwa - Vice President/Fund raising coordinator.

  3. Henry Obodo - Secretary/Screening programme coordinator

  4. Oluchi Ikechukwu - Financial Secretary

  5. Miracle Okechukwu - Treasurer

  6. Uchechukwu Okoani - Publicity Secretary

  7. Prof.Ezema Charles - Research coordinator

  8. Chinwe Obiekwe - Programme Coordinator

  9. Esther Ibeye - Helpline/Information officer

  10. David Ugwu - Helpline/Information officer

  11. Chioma Atu - Helpline/Information officer

  12. Esther Ibeye - Helpline/Information officer

  13. Kenechukwu Nweke - Helpline/Information officer

  14. Joshua Nneji - Database/Communication officer

  15. Jane Ukuaki - Database/Communication officer

  16. Favour Okonkwo - Database/Communication officer

Patrons

  1. Rev Benjamin Nsiegbunam

  2. Sir Emmanuel Oha

  3. Pastor Bamidele Sunday

  4. Dcn.Collins Amarachukwu

  5. Barr Brightson Okenwa

  6. Arc Chidi Nwanyawu

  7. Mr Tony Obiekwe

  8. Mr Ifesinachi Nwanyawu

  9. Mr Ikemefuna Aneke

Trustees

  1. Charity Amarachukwu - Chairperson

  2. Rita Okoye

  3. Chidinma Anuebunwa

  4. Prof Ezugwu Frank

  5. Hon. Uche Nwobodo

Medical/Scientific Advisers

  1. Prof. Emodi Ifeoma - Consultant Paediatic Haematologist

  2. Prof.Ikefuna Anthony - Consultant Paediatic Haematologist

  3. Prof.Odetunde Odutola - Consultant Paediatic nephrologist

  4. Dr Madu Anazoeze - Consultant Haematologist(Adult)

  5. Dr Ezenwosu Osita - Consultant Paediatric Haematologist

  6. Dr Ekwuazi Kingsley - Consultant Obstetrics and Gynaecologist

  7. Dr Akpeh James - Consultant Otolaryngologist

  8. Dr Bakare Muideen - Consultant Neuropsychiatrist

  9. Dr Chukwuegbo Emmanuel - Public health Physician

  10. Dr Eneh Chinenye - Public health Physician

  11. Nneka Egboo - Psychologist

  12. Ohotu Becky - Assistant Director of nursing services

  13. Maduechesi Henrietta - Chief nursing officer

  14. Nwankwo Chineremogo - Senior Nursing officer

Membership/Volunteering Registration

If you have sickle cell disorder, you can join us, use our services, let us help you overcome some of the difficulties associated with the disorder. If you have not and not affected in anyway or wish to be part of us, then join our network pf volunteers and supporters who help us to raise awareness about the disease, be part of running the charity, providing administrative backup,helping in fund raising activities for sickle cell awareness, research and support for sickle cell warriors. By joining, together we can all alleviate the suffering of people living with Sickle cell disorder and their families. Join Us Now

Donations

Donations from the public and fund raising activities are part of our life wires, without them we would be unable to finance the essential educational and support projects. We benefit from the support of a wide range of individuals and organisations nationally who together play a vital role in our success. Over the past one and half decade our every effort rested on our mission to improve the quality of life of individuals and families affected by sickle cell disorder through quality care, support, advocacy, education and research. We have remained committed to this cause and have been providing various services to sickle cell warriors and their families. These feats is made possible with your support and trust in what we do and these has a strong support to us. To take our cause further we need your support.Its your contributions that can help us achieve our vision.
Donations can be sent to Access Bank: Account Name: CHARITY AMARACHUKWU Account Number: 1648634415. Submit a scanned or photographed copy of the completed Financial Transaction along with the following to infocanon@gmail.com

  • Payment Teller
  • Name & BioData (Optional)
  • A brief statement about yourself and why you choose to support the foundation
    • Blood Donation